Meijering, et al. 56 (1) - Appendix A-C
Appendix A
The SDM-knowledge questionnaire (SDM-K-Q) is shown on the following pages.
Questionnaire: Shared decision-making
This questionnaire is about ‘shared decision-making’ in healthcare. You may have heard about this before. Patients and healthcare providers think of ‘shared decision-making’ as increasingly important.
With this questionnaire, we aim to understand your knowledge about the topic of ‘shared decision-making.’ The questions are not about your satisfaction with your healthcare provider but rather about what you know about ‘shared decision-making.’
While answering the questions, reflect on the last time you or a loved one discussed a treatment with your doctor in the hospital. Even if you are not currently a patient, we invite you to complete this questionnaire.
Your responses will remain anonymous, ensuring that no one can identify your answers as yours.
Completing the questionnaire will take about 10 minutes.
1.1. Start questionnaire
Have you ever heard of the term shared decision-making?
You can select more than one answer option
□ No
□ Yes, during a visit to a doctor or other healthcare provider
□ Yes, I have read about it online
□ Yes, I have seen it in a decision aid
□ Yes, I have seen the national campaign about shared decision- making
□ Yes, other:
□ I don’t know
For all the questions that follow, you may select only one response option.
1. What does shared decision-making mean according to you?
o The doctor asks your permission for a treatment
o The doctor discusses the treatment options with you and collaborates to choose the one that best aligns with your wishes
o Doctors who specialize in your condition consult with each other and give advice about the treatment
o I don’t know
2. Which of the following aspects is the most important in shared decision-making?
o Patients should be involved in the decisions about their own bodies
o Doctors provide their opinion about treatments
o Family members of patients are included in choosing the treatment
o I don’t know
3. Which of these three questions is the best one to ask to support shared decision-making?
o "What can I do to recover?"
o "What does this treatment involve in my situation?"
o "When can we schedule the next appointment?"
o I don’t know
4. What is the best approach if your healthcare provider has a different opinion than you do?
o The healthcare provider is responsible for your treatment and thus makes the final decision
o The patient’s preference should always have priority
o You and the healthcare provider try to agree on a treatment choice by discussing it together
o I don’t know
5. What is the most important aspect of shared decision-making when it comes to choosing a treatment?
o Choosing a treatment that doctors know is effective for many patients
o Considering the patient’s preferences when selecting the best medi- cal option
o Choosing the most effective proven medical option
o I don’t know
Now, several statements will follow.
Please indicate for each statement whether you think it is true or false.
6. “Shared decision-making is not suitable for people who struggle to understand information about their health.”
o True
o False
o I don’t know
7. “In shared decision-making, the healthcare provider knows best what is good for me.”
o True
o False
o I don’t know
8. “In shared decision-making, the patient makes the final decision.”
o True
o False
o I don’t know
9. “In shared decision-making, ’not treating’ or ’watchful waiting’ can also be an option.”
o True
o False
o I don’t know
10. “Shared decision-making is limited to specific illnesses.”
o True
o False
o I don’t know
11. “Shared decision-making does not only happen in the doc- tor’s office, but can also take place on the ward.”
o True
o False
o I don’t know
12. “In shared decision-making, the healthcare provider makes decisions on behalf of the patient.”
o True
o False
o I don’t know
13. “In shared decision-making, the contribution of the patient and healthcare provider are equally valuable.”
o True
o False
o I don’t know
14. “Shared decision-making is limited for chronic illnesses.”
o True
o False
o I don’t know
15. “Shared decision-making can only involve adults and is not meant for children.”
o True
o False
o I don’t know
16. “If the patient is unable to make decisions, the family can assist in shared decision-making.”
o True
o False
o I don’t know
In the following questions, you can indicate your thoughts on when shared decision-making can occur.
For each example, please indicate whether you think it is true or false.
17. Shared decision-making can be applied if you are pregnant and want a cesarean section.
o True
o False
o I don’t know
18. Shared decision-making can take place when you need to check in at the appointment desk in the hospital.
o True
o False
o I don’t know
19. Shared decision-making can happen when your doctor rec- ommends you a specific vaccination.
o True
o False
o I don’t know
20. Shared decision-making can be applied with the nurse on the ward when deciding what care you will receive at home afterward.
o True
o False
o I don’t know
21. Shared decision-making can take place if the orthodontist indicates that your child needs braces.
o True
o False
o I don’t know
22. Shared decision-making can be applied when you visit the physiotherapist for an injury.
o True
o False
o I don’t know
23. Shared decision-making can happen at the pharmacy when you pick up your medication.
o True
o False
o I don’t know
24. Shared decision-making can take place if the dentist rec- ommends extracting a tooth.
o True
o False
o I don’t know
End of questionnaire